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I wasn’t supposed to tell anyone what I learned. I wasn’t supposed to say these words, but I did anyway.
U Can’t say That! ☣️
Category Archives: Faith
WAIT… Til You See THIS!!
Transformed and Free
People usually find me because they are searching for answers about Vaccine Injuries, Williams Syndrome or because they are battling Lyme Disease.
In many ways, good and bad, we’ve been the poster children for both.
I’ve learned so much about our bodies through all of these medical issues our family has experienced and I am thankful because all of this has prepared me for Lillirose, Our Rainbow Baby.
From birth I knew that….
💝 Lillirose is differently-abled.
I also knew that…
💝 She has genetic differences, specifically COMT & MTHFR.
COMT
and
MTHFR
The estimate is that 40% of the population have one of these genetic issues. Lillirose won the genetic lottery and got both. These genetic differences have wreaked havoc in her body from day one.
One very important truth about both of these genetic differences is that her body CAN NOT metabolize or utilize pharmaceutical medications. She would only experience the “rare” side effects of medications. The clouds were looming, another storm was brewing…and engulfing Lillirose.
Her storms looked like this…
Lillirose WAS…
▪️ always seeking sensory input
Example: She used to bang her head, her legs on the side of her crib, bite at her arms, bite us, bite me throughout each time she nursed, she gnawed huge splinters of woods off of her crib, I had to buy fabric covers to protect her.
▪️ Her speech development was delayed. When it did develop she would only speak to her immediate family and her phrases were very repetitive. Spontaneous thoughts, through speech never manifested.
▪️Fear paralyzed her ability to speak in public.
▪️Terrified and tormented all day long.
▪️ She used to walk around repeating to herself, “It’s ok. It’s ok, It’s ok. It’s just Mama, Dada, Sissy, the dishwasher.” anything and everything scared her, she had to constantly try to calm her fears.
▪️ She didn’t sleep for the first 10 1/2 mths of her life longer than 40 mins at a time.
▪️ She couldn’t complete one therapeutic evaluation, she would sit in my lap, scream and bang her head on my clavicle.
▪️ Much of her everyday behaviors were repetitive.
▪️ She needed one of us as an Aid in her Children’s Church Class at all times.
▪️ Transitions in her routine were very excruciating.
▪️ Her bilateral functions were significantly challenged along with her vestibular system.
Example: Her ability to balance and invert her head caused great struggle. Learning to alternate her legs going up a flight of stairs was hard but going down in the same manner seemed near to impossible.
And with all these behavioral issues she continued to battle. I knew that pharmaceutical medications were on the near horizon. I also knew she wouldn’t benefit from them and they would only increase her suffering.
So I did what I always do….Research!
I found out that we all have an Endocannabinoid System that needs CBD Oil. I also found out that many of Lillirose’s behavioral issues could be improved greatly if not eradicated by the use of a pure, potent and powerful CBD Oil.
And I found it! The most beneficial nutrient on the planet to support her body with all of its challenges…..what I call our “miracle in a bottle” the world’s most potent, powerful and purest CBD in the World …..and it has transformed Lillirose’s life!
Example: On Day 4, we were all sitting around the lunch table in our home, no talking was happening, just a lot of chewing and swallowing, Lillirose spontaneously said, “I feel SO happy! Thank you for taking such good care of me!” 😳👈🏽 My husband, 14 yr old daughter and I, jaws dropped wide open and I managed to say, “You’re welcome Sweet Girl! We love you so much and are SO glad you’re feeling happy and shared that with us.”
💚 This is Lillirose today, doing the impossible (she’s running in the black sweat outfit) 👇🏽👇🏽
💚 We got to the park and Lillirose said, “I hope friends will be there to play with.”
🥰🥰🥰
💚 SHE approached this brother and sister team, waved at them and said,
“My name is Lillirose. What’s yours?”
😳😍😳😍😳😍
💚 She is the one joyfully screaming and talking the loudest. She’s running far away from me, with kiddos she JUST met: by her own initiation, carefree and transformed.
💚 Climbing up and down stairs alternating legs. Sliding down slides. Climbing rocks. Running across uneven terrain…doing it all like a Boss!
💚 A very different girl and a very different life!
Thank you God for CBD!
💚🌱🌈🌱💚
No Such Thing As A Long Time
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“There is no such thing as a long time. Only memories worth remembering and memories that aren’t.” (Sylvester Stallone This Is Us Season 2 Ep 3)….I felt such relief after hearing these words! A counselor once told me “Sophie’s been gone 2 yrs. It’s time to move on.” Excuse me??? As if 720 Days WITHOUT […]
Gifts: Past & Present
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Don’t you see that children are God’s best gift? Every day with my children is a gift. I continue to cherish and unwrap each moment. Each day new, exciting, challenging and exhausting. I ADORE. My.Girls!!!! And even though Sophie isn’t in this image below, she’s included in all I am about to say, because she truly taught me […]
There’s No Place Like Home!!!!
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Our halls are decked, tree trimmed, stockings hung by the chimney with care, lights lit, sprays of garland outline our walls, it’s Christmas!!!! The most wonderful time of the year and yet we miss her, Sophie. This is our 6th Christmas without her. It feels like an eternity and just yesterday. It’s rough when your […]
MTHFR & Lyme!!@$!!@!!$?!!
Abby tested positive for Lyme Disease, Rocky Mountain Spotted Fever and MTHFR@$!!@!!$?!! No I didn’t just swear but I could!!
Many have an understanding of Lyme Disease but have never heard of MTHFR. When I was 6 weeks pregnant with our rainbow baby Lillirose, I was informed that I had MTHFR; not knowing what it was, I became informed and still have lots to learn.
MTHFR is a genetic mutation that affects 40% of the population passed on by one or both parents. One major effect is that it inhibits the body from absorbing nutrients specifically Folic Acid and Vitamin B-12. These two nutrients are essential for normal hormone production specifically dopamine, healthy pregnancies in adulthood and a host of other issues related to health and wellbeing.
I knew it was likely Abby had one or all of these medical issues, since I have navigated through them myself and Lyme can be inherited through pregnancy. (I was sick when I was pregnant with her.) Vigilanty and suspicious, I have watched symptoms manifest and progress in Abby over the years. So we had her tested. Not shocked, but frustrtaed and extremely saddened by her positive results, I discussed her treatment protocols with Longevity Health Center. I could feel my heart racing, my flesh turn hot and my heart break. I sort of knew it was coming. So why does this information feel surprising and so awful?? Because it’s my Sweet Abigail, my firstborn.
1st Day of 5th Grade
My girl that radiates joy even through her trials and when her heart is broken by grief. Abby’s watched Sophie and I battle for our lives. Sophie won, I lost. Each day I’m realizing Heaven is far better. Personally, I think Abby’s battled enough for 10 lifetimes and she’s only 10 years old!!! I know what lies ahead, the dangers, the pain, the struggle and the grit she will need to endure it all.
Children with Lyme struggle more with the neurological effects than the physical ones. LLMD’s call Lyme the great imposter, it hides behind other diagnosable issues. A child can have one or a combination of the following, ADHD, Oppositionally Defiant, Migraines, Sensory Issues, Vertigo, Motion sickness, OCD, Autism, Tourette’s, JRA and Depression just to name a few.
Abby’s Lyme symptoms began when she was 6 years old. When her first migraine hit, it was violent. She was in the backseat of a rental car and began screaming “make it stop!” while banging and hitting her head. We made it to our destination and then the vomiting came. It was awful. She had never felt that kind of pain before and she has had migraines similar to this ever since. Instant, violent, awful.
Brain fog, Distractibilty and Hyperactivity have also reared their ugly heads. Especially the H….Over the past couple years, she’s complained that she feels she can’t control her behavior and speech. The D and brain fog play a huge role in her forgetfulness, mostly of personal belongings.
Sensory issues have increased yearly. Mostly, tags in clothing and certain types of fabric and socks she refuses to wear now. We just know what they are and avoid them.
Bone and joint pain have been significant as well.
None of these symptoms are considered “clinical” or crippling for her but they have slowly progressed over the years. She’s lamented the challenges and felt “off.”
God began preparing us last April as we began looking into homeschooling. Something Abby very much wanted and pursued. It was one of the questions Dr. Anderson’s nurse asked me, “Does she homeschool?” “Yes she begins this fall.” I said. “Good, because she will need the flexibility and rest during treatment,” she said. I then listened to the physical dangers to watch for…seizures topped the list. So a new race has begun, one I wouldn’t wish on anyone. I feel responsible and yet there’s no time for guilt.
We have hard work ahead…..this is not a sprint, it’s a marathon. I know, I have run this course before. God has blazed this trail. I have been prepared to lead Abby and I’m totally not a runner. Good thing she is!!!! The only way out…is, through. I’ve made it through. I’ve crossed the finish line. Abby will cross the finish line!……..just gotta set the pace.
Tearing up the Cross Country Course
Breathe ….Momma…. Breathe… Abby….
Takes longer to bake a potatoo
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My husband, Russ didn’t want to deliver Our Precious Miracle Lillirose but he almost did. I decided I wanted to do most of work of delivering of our “Rainbow Baby” at home and then proceed to the hospital for the actual birth. No anesthetics this time around…completely natural. Unfortunately, I was hospitalized at 23 weeks […]
Say What???
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Saying anything about her truth has never been easy for Abby. She’s always been a girl who’s kept her thoughts and words under tight lock and key. I worried about her constantly after Sophie went to Heaven. I knew she must be thinking and feeling things, but how would she ever communicate her brokeness to […]
The War is Over!
I am FREE!!!! I am FREEEE!!!!!
and
he who The Son sets free is free indeed!
When our family moved South 8 months after Our Beloved Sophie and Nancy went to heaven; I believed that God was asking us to move to a place we had never been or laid eyes on before, like modern day Abrahams. God was calling us to move to a new land flowing with milk and honey, the promised land. Enthusiastically and broken hearted (yes they can co-exist at the same time) filled with faithful promises we uprooted our family, our memories, and our lives. In the midst of the excitement and sorrow I had forgotten about the giants that preoccupied the very same land!!! I overlooked that we would have to do battle once again. However, I did remember our family’s previous battles, our wounds were still fresh, not even healed. As a family we battled, as individuals we fought. We were battle scared and weary. Blood, sweat and tears oozed from every orifice of our bodies, hearts and minds prior to our relocation, if you would have told us we had one more epic battle coming our family’s way I/we would have run in the opposite direction! We were too weak, broken and wounded going into this war, in our own strength we could not win! But, we desperately wanted to apprehend the promises of God and we began to march forward.
2 years after our relocation I became debilitated with a sickness foreign to me and my family. When my test results came back positive for Lyme and Rocky Mountain Spotted Fever our breath left our bodies. What???Lyme??? is that real? Rocky Mountain Spotted Fever?? huh?? We quickly learned RMSF is the only tick related illness that is categorically fatal and Lyme is very difficult to treat. We were shell shocked, in disbelief certainly this isn’t the promised land, God, is it???
I was already living the hard-pressed life Paul talks about in Phillipians torn between Heaven and Earth and now my body and parts of my heart were really ready to be relocated to heaven. I needed my physical suffering and pain to end, but my heart and mind knew I was desperately needed here on earth. However, we did try to prepare our hearts, to hold each other loosely and each day became a gift as time moved forward, moment by moment.
As we pursued medical treatments and followed over 8 different treatment protocols; 2 that almost ended in death, however fervent prayers for wisdom and healing continued. Some of the sweetest spoken from my 9 year old, Abigail who was nursing a very broken heart after saying good-bye to her baby sister a very short time prior. 
“Mommy are you going to heaven?” she would whisper. “Not today my sweet girl, not today.” I whispered back.
I was 100% totally committed. Whatever I needed to do to win this battle, I would do!
Lots of battle plans failed. The war strategies are so vastly different for anyone who battles in these wars. There’s not one successful blueprint for any individual warrior to follow! God revealed my final battle plan. I began to commute to GA to meet with a Major General, an alternative medicine expert commissioned in the Lyme and tick related illnesses battle. His wife was infected. Dr. Anderson did anything and everything to free her. Today she is also free!
After 8 months of commuting, my battle ended in victory! On January 13th, 2014; on my last visit to GA to see Dr. Seneca Anderson. All spirochetes that have systemically attacked my entire body for 730 days, have been eradicated! No longer a captive, my life has been restored. Liberation, jubilation, restoration, redemption, Victory! War over! I did lose some of the battles but I won the entire war!! God, Dr. Anderson and I have slayed those giant Lyme and Rocky Mountain bugs! 100% success and 100% destroyed! My body is FREE!!!!! An extraordinary gift, my life and health restored! Faith renewed. Words fail to communicate my/our excitement, but it feels a bit like this for all of us….
A new season, a new year, new dreams, a new me and a new beginning! So much newness, joyful electricity surges through my veins. Free!!!! from a disease that most traditional doctors say can not be completely removed from our bodies once infected. Patients infected will always do battle with Lyme and other tick related spirochetes once they have invaded. That’s a lie that has been swallowed! I want to give anyone out there hope and say ….it is possible to rid your body of these diseases, I and many other patients of Dr. Anderson’s can testify! Is it hard to exterminate the infectious bugs? Absolutely! Is it painful? Absolutely! Are sacrifices made? 100 percent, yes! But, Freedom is achievable! You can WIN!
I can say today I have won! Not only is my body clear from Spirochettes: but the toxins they leave behind are also detectable and I have no detectable toxins!! The lowest toxin level registered by any adult is a 5 and guess what??? I am a 5!!!!!! no toxins of any kind, chemical, environmental, free radical, bacterial nothing, none, nada, zip~~~~clean as a whistle!
As I rejoice, I know someone else is crying and asks why….I used to say “hang on” but now I say “let go and let God lead you.” Intimately, I know how hard the battle is, I know the eminent dangers and the darkness that surrounds the battle field, and so does God. He’s there with you fighting and going before you.
At my last Drs appt, when my freedom was confirmed; this was my daily devotion from Streams in the Desert. His timing is perfect. I wanted to share it. God wanted to show me his heart towards me and to you. He draws near to the broken-hearted and binds there wounds. Don’t give up sweet one!
When he has brought out all his own, he goes on ahead of them.(John 10:4)
This is intensely difficult work for Him and us—it is difficult for us to go, but equally difficult for Him to cause us pain. Yet it must be done. It would not be in our best interest to always remain in one happy and comfortable location. Therefore He moves us forward. The shepherd leaves the fold so the sheep will move on to the vitalizing mountain slopes. In the same way, laborers must be driven out into the harvest, or else the golden grain would spoil.
But take heart! It could never be better to stay once He determines otherwise; if the loving hand of our Lord moves us forward, it must be best. Forward, in His name, to green pastures, quiet waters, and mountain heights! (See Ps 23:2.) “He goes on ahead of [us].” So whatever awaits us is encountered first by Him, and the eye of faith can always discern His majestic presence out in front. When His presence cannot be seen, it is dangerous to move ahead. Comfort your heart with the fact that the Savior has Himself experienced all the trials He asks you to endure; He would not ask you to pass through them unless He was sure that the paths were not too difficult or strenuous for you.
This is the blessed life—not anxious to see far down the road nor overly concerned about the next step, not eager to choose the path nor weighted down with the heavy responsibilities of the future, but quietly following the Shepherd, one step at a time.
Dark is the sky! and veiled the unknown morrow!
Dark is life’s way, for night is not yet o’er;
The longed-for glimpse I may not meanwhile borrow;
But, this I know and trust, HE GOES BEFORE.
Dangers are near! and fears my mind are shaking;
Heart seems to dread what life may hold in store;
But I am His—He knows the way I’m taking,
More blessed even still—HE GOES BEFORE.
Doubts cast their weird, unwelcome shadows o’er me,
Doubts that life’s best—life’s choicest things are o’er;
What but His Word can strengthen, can restore me,
And this blest fact; that still HE GOES BEFORE.
HE GOES BEFORE! Be this my consolation!
He goes before! On this my heart would dwell!
He goes before! This guarantees salvation!
HE GOES BEFORE! And therefore all is well.
J. Danson Smith
The oriental shepherd always walked ahead of his sheep. He was always out in front. Any attack upon the sheep had to take him into account first. Now God is out in front. He is in our tomorrows, and it is tomorrow that fills people with fear. Yet God is already there. All the tomorrows of our life have to pass through Him before they can get to us. F. B. Meyer
God is in every tomorrow,
Therefore I live for today,
Certain of finding at sunrise,
Guidance and strength for my way;
Power for each moment of weakness,
Hope for each moment of pain,
Comfort for every sorrow,
Sunshine and joy after rain.
dead and Alive 